"Live life on purpose ~ not by accident" ~ Alicia

"When it hurts to look back, and you're scared to look ahead, you can look beside you and your best friend will be there."
-- Author Unknown

"A laugh is a smile that bursts.” ~ Mary H. Waldrip

"Set your goals high and don't be deterred by those who say it is impossible." ~ Steve Fossett

"Our Limitations live only in our minds. But if we use our imaginations, our possibilities become limitless."
Jamie Paolinetti

"A day without laughter ~ is a day wasted"
Charlie Chaplin

"In the end, we will remember not the words of our enemies, but the silence of our friends."
— Martin Luther King Jr.

"Gratitude is an inner smile shared" ~ Alicia

Monday, June 18, 2012

Phew...Thank you steroids! I made it!

"A strong woman stands up for herself.  A stronger woman stands up for everyone else."  ~  Author Unknown

Hello my friends!
It has been a month since I wrote
for all of us!
What a crazy, busy, fun,
but sick and painful month it was!

Here is my quick rundown of
what I had going on...
~My daughter graduating College
an hour away~
~Celebrating afterwards
~A three hour speaking engagement
to write, publish and present as
the "Motivational Speaker"
~My cousin had an Art gallery opening
and had two night events
~getting our basement finished (construction)
and decorated, because my in-laws are coming
from England...
~that included shopping, hard tasks for people
like us.  (never a problem in the old days)
~And finally
~ my son graduated High School
and we had a gathering here to celebrate
his accomplishments!  PHEW!  What FUN!

Trust me, there are more things that I
had on my plate, but you get the picture.
Problem was, my friends, I was back in bed
again...sick.  Having a hard time walking (still am),
and just no energy.  How on earth could I
make it to my children's graduations?
Truly, I was petrified to miss them.  I have
friends with RA that have missed big events
like these - hubby's 50th, children's weddings,  etc...
we can't control our bodies.

What was I going to do?  I called all 4 docs -
Rheumy, Podiatrist, Neuro, and PCP...
All agree with my idea of getting on steroids
again.  4th time this year.  
We believe it HAS to be part of my
regimen or I will be up and down ALL.THE.TIME.

I did make it to all.of.the.events!   PHEW!

It was exhausting, painful like never before,
but so worth it!
I used to worry about the side effects of
steroids, esp. the weight!  My partner said
he loves me just the way I am inside.  He is
battling with me.  When you can't
even get out of bed now...you will take quality
over quantity...as my mom used to say.
I had a decent quality of life this month ~
and it was filled with JOY!
and FEAR!

Those with RA know why...I constantly feared
would I be able to make the graduations?
Would I be able to fufill my speaking engagement?
blah, blah, blah.

So, I have decided to add a little something to my
business cards ~ "The Sneaker Speaker!" HA!
Hey, we have to laugh...our lives are tough, so tough.

I am hoping that this blog brings you a little understanding,
a little hug, a little smile, and most of all ~ knowing that
someone else in this big world is walking in your shoes...
I mean sneakers ~ representing us the best I can.

Healing hugs,


Mal said...

Brilliant as usual Alicia! I am SO happy you made it to all your events and survived such a hectic month.
Thank you again for speaking up for us and sharing your world. xox

Alicia said...

Mal, my dear friend, thank you for being a consistent reader...and feeback giver! I cherish every time I see your name up there. <3 and hugs...hope you are feeling well and enjoying life. xo

More than RA said...

Alicia, I had such a crazy few weeks too, graduations and such. I am so glad you made it to all the events.I rediscovered my blog and yours,looking forward to your blogs! I hope you feel better soon